[Access] Accessibility - Process Problems

[jeannemarie moore]

Hi Cindy,

Sometimes, not as often, I'm sure, I feel just how you are describing
because of fibromyalgia.
And I feel discouraged that our committee is so small.
I appreciate so much what you've done, as a person... at church, in our
group, as the "secretary"...
I really appreciate the effort you've made to communicate.
thank you so much.

j-m.

 

-----Original Message-----
From: access-bounces at uueugene.org [mailto:access-bounces at uueugene.org] On
Behalf Of Cindy Pitcairn
Sent: Saturday, April 05, 2008 12:43 PM
To: Access Issues and Discussion
Subject: Re: [Access] Accessibility - Process Problems

Just some top of my head responses:

Perhaps this upcoming CC meeting, April 12th, does not give us enough time
to brainstorm how we want to present this, especially as we would want to
circulate whatever we come up within the committee for review and comments.

I agree, in general, with your comments, J-M. I see it as a huge task-- but,
of course, if we want to change our society, we need to start locally,
within our committee and our church.

One reason I see it as a huge task is that I see almost everything that way,
and most, if not all, of that attitude stems from my disability. 
Even using my computer is difficult today because my whole body feels like a
big pincushion--a feeling that I can't expect anyone except another person
with MS to understand. And yet I am writing this because I want to "stay in
the loop". 

While problems like lack of mobility, vision, and hearing are generally, at
least in part, comprehensible to most people, "silent symptoms" or
manifestations of a disorder are not, or are more open to misinterpretation
("she can do it if she wants to" or "I saw him the other day and he didn't
seem to have any problem at all"). Most people I know with such symptoms,
myself included) give up after a while trying to explain them.

I know I'm preaching to the choir here, so please forgive me. I hope some of
my rant helps explain why I feel I can't continue on as secretary of the
committee,  but still want to be involved.

Cindy


jeannemarie moore wrote:
> How would you go about this, I mean what do you have in mind?
>
> I will have JUST moved, so I'm not sure I can make it...
>
> and, by the way, David the research guru, would you be so kind as to 
> research the words to:
> "the road goes ever onward" or "ever on" from the movie The Trilogy 
> and send them... quick enough, Mary could braille them...
> She is already (kindly) brailling the responsive reading for the three 
> of us for tomorrow...
>
> This is an issue worth discussing and we may need to use instances as 
> examples, they don't have to be "wrongs."
>
> j-m.
>
>  
>
> -----Original Message-----
> From: access-bounces at uueugene.org [mailto:access-bounces at uueugene.org] 
> On Behalf Of David Gilmartin
> Sent: Saturday, April 05, 2008 1:13 AM
> To: Access and Discussion Issues
> Subject: [Access] Accessibility - Process Problems
>
> I think Jeanne-Marie has accurately targeted some of the places where 
> UUCE's process fails to provide accessibility, such as in my effort to 
> have an item on the agenda even though the background information had 
> not been shared in ways that made it accessible to everyone with 
> adequate time for consideration before the meeting. Or the subject of 
> her recent email -- about it appearing that words of some items for 
> Sunday's big celebration will not be accessibly available to all.
>
> And I think that some progress might be made if the issues and 
> difficulties could be discussed separate from any specific instances.
>
> Is anyone interested in helping to put this concern into some form for 
> discussion at the upcoming meeting of the Coordinating Council, April
12th?
>
> David G.
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>   

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